The Brier PatchThe Brier Patch
   
06.06.07
The First Challenge

My woman grew into some fairly serious food allergies about ten or eleven years ago. I'm talking Anaphylactic Shock kind of serious, as in three ambulance rides to the Emergency Room within two weeks. She could've easily died without the emergency medical treatments. Scary stuff. One time, I was standing at the end of her bed in the emergency room...she was surrounded by six or seven doctors, nurses and technicians, and her eyes rolled back and she rose up, and then collapsed. I thought she died, and I think they did as well. I will never, as long as I live, forget that.

She had the full battery of skin tests then...eighty plus pricks and under-skin injections on her back and arms, and it was determined she was MAJOR allergic to Soy, Peanuts, and all tree nuts. Soy is in fucking everything...even a Hershey's chocolate bar.

We adjusted our diets accordingly, and just dealt with it as best we could. We really could not go "out to eat" unless we went to a nice restaurant with a chef who knew EXACTLY what was in the food they prepared. For example, we generally make all of our bread...Soy is in 99.99% of bread. We had cards printed, in several languages, to give to the dumber than dumb-ass servers we usually encountered. For the last ten or eleven years I have read every label on everything I've purchased in every store. I upped my optical prescription because the fucking print is so small. Better than the alternative.

It changed my life just like hers. I do loves me my sweetie.

We adapted together. We had to...no choice. No big deal, actually it is a much bigger deal for the people we're around because they just don't seem to understand what Anaphylaxis is. Don't get me wrong...some do, but more do not.

Six years ago we moved from point A to B, and had the same tests done which provided the same results...Major life threatening reactions to Soy, Peanuts, and tree nuts. Oh well...business as usual...we decided to just keep on keeping on...actually, we had no choice.

Two weeks ago...we had the same tests done...same results, but this time I / we were a little more concerned because she tested major positive for tomatoes and onions, which we eat everyday...and green beans. It didn't make any sense, to me / us.

We were consulting with the doctor, and I was telling him basically he was a Voodoo Man and I was gonna put Yabu on his ass, and I / we didn't believe the diagnosis. There is no way she is allergic to some of the food groups she tested positive for...we eat 'em everyday. We were suspicious.

Bombshell:

He said maybe we should do some blood work.

Excuse me, but I said, "What the fuck are you talking about?" I don't care if it cost a million fucking dollars...do it...why didn't you do it before? The jury is still out on that one...I don't think the tests were available when this nightmare started...but I'm going to find out. Find out for certain. There will be no recourse; we just want to know.

My Sweetie goes in and gives 33 vials of blood...one for each food group that is suspect. The results come back with a BIG GOOSE EGG across the board. WTF is going on with that? The results state that she is allergic to NOTHING. They state that EVERY test she has had returned a false positive. WTF is going on with that?

11 Fucking Years!

There is no doubt that she went into Anaphylactic Shock on several occasions, but the cause was apparently misdiagnosed...multiple times. Something caused it for certain, but I don't think it was food...I think it was more likely environmental.

Two Days Ago:

She goes in for the Soy Challenge, because we just don't believe the results. The challenge is done in a controlled environment in the Allergists office or the emergency room...whatever is more convenient. I kid you not.

The doctor used Soymilk for this first test. His call. First they smeared some on her arm and checked it twenty minutes later, and then they put some on her lips, and then she drank a teaspoon, and then she drank a tablespoon, and then another tablespoon, and then she did a shot, and the she drank a cup...and there was no reaction. None Whatsoever.

What does this prove? I'm not sure, but I will say skin tests for food allergies are a bunch of voodoo. You are just as likely to have a false positive as not. Go for the blood work.

Note: We used several different doctors in different states, but until the blood analysis became available, we lived a different life.

Am I pissed? Yes and no. Are we going to pursue this, as in going after anyone? Absolutely not. Are we better cooks? Absolutely.

The next challenge (July) will be peanuts.

Life is good my friends, just understand we had second and third, and fourth, and fifth opinions...and they all got it wrong...except for this last guy.

This will be a life changing experience for us...in a positive way, but she will always have epinephrine with her, in an EpiPen. Always.

Posted: 23:05
Category: Observations
Pings: 0
Comments

Holy cow, my friend.

The immune system is a funny thing. As for things you eat every day, our dog's allergist said that if your body is familiar enough with things you can get a false positive, hence why it's hard to tell if dogs are allergic to beef or chicken, since that makes up the majority of their food.

My great experience with immune issues is all with the precious pup, who went through the same kind of hell as your beautiful lady. Lots of blood and skin tests that came back to NOTHING even though she was clearly sick. The only thing that helped her was anti-rejection medicine (yeah, what people take after a transplant!), and even better, moving to CA, so I guess the trigger was environmental in our case.

I wish I knew what the answer was. All I can say is that I hope your lady stays well and you can go back to eating good and not worrying so much.

Posted by: caltechgirl at June 7, 2007 01:09 AM

It has been a ride so far (almost like a golf cart...); however, the road appears to have gotten much smoother.

Do you want that Gooey Cake recipe??

; )

Posted by: Christina at June 7, 2007 08:25 AM

I think Christina and Dash's magic cooking cured you!

Good luck with the tests, dude. Keep me posted!

Posted by: zonker at June 7, 2007 09:01 AM

... that is GOOD news.....

Posted by: Eric at June 7, 2007 09:08 AM

I am keeping my fingers crossed that everything turns out all right. Keep a good eye on that beautiful lady!

Posted by: oddybobo at June 7, 2007 09:18 AM

Oh that is great news (but also disturbing after living like that for so long). I wonder how many kids/families are going through the same thing; there's nary a school now where you can take a PBJ for lunch.

Keep us posted on the results in July, it's very interesting. I am down with the EpiPen, too for my little Dolly girl.

Posted by: Chickie at June 8, 2007 11:22 AM

Wow! I feel for you, but for her, it's indescribable.
What a journey, yet to be in just the midst.
Never read anything like this before.

Posted by: dick at June 8, 2007 05:04 PM

I can understand where you are coming from! Glad to hear that some major items are being eliminated; it would make life easier, huh? It took the doctors several years and multiple tests to finally find out what was wrong with me (other than the obvious!). Keep on keeping on; hope to see you and your lovely lady soon!

Posted by: Michele at June 9, 2007 10:11 AM

Oh my!! On the one hand I am so very happy that your food prep and comsumption will be so much easier but still - 11 years!! Holy crap!!

My love to your sweetie (and to you) - you've been through the ringer on this one!

Posted by: Richmond at June 9, 2007 06:44 PM
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